Resources for Parents & Families

1. Nemours KidsHealth – Heart & Circulatory System offers child-friendly educational content on heart function, common pediatric conditions, and wellness tips for parents teaching children about cardiovascular health.

2. Parent Heart Watch works nationally to prevent sudden cardiac arrest in youth by providing screening guidance, educational tools, and family support resources.

3. Mended Little Hearts connects families of children with congenital heart defects through mentoring, care packages, education, and community-based peer support.

4. Children’s Heart Foundation funds congenital heart defect research while offering family support programs, diagnostic and treatment navigation, and educational materials.

5. Youth Heart Watch (Children’s Hospital of Philadelphia) focuses on preventing sudden cardiac death in young people through school-based AED access, CPR training, screenings, and prevention education.

6. CHD Coalition unites families and professionals as a volunteer-driven advocacy group enhancing congenital heart defect care through awareness campaigns, policy efforts, and community support.

7. Conquering CHD advances congenital heart defect education, research collaboration, and mental health resources while hosting community events for affected families.

8. Pediatric Heart Network is a research consortium providing information on clinical trials, treatment advancements, and resources for pediatric heart conditions.

9. Ollie Hinkle Heart Foundation addresses unmet needs of families impacted by pediatric heart conditions by offering mental health support through Ollie's Branch, along with resources and community events for the St. Louis region and beyond.

Resources for Teens & Youth

1. American Red Cross – Red Cross Youth teaches teens CPR, first aid, and leadership skills to promote heart health and emergency readiness among young people.

2. Voices for Healthy Kids (AHA) equips teens with advocacy tools to lead policy campaigns improving school and community heart health environments.

3. UCLA Teen Heart Health Initiative engages teens in peer-led education and outreach addressing diet, physical activity, and stress to foster cardiovascular wellness.

4. American Heart Association - Youth Heart Ambassadors challenges teens to raise awareness, funds, and advocacy for heart health through team-based community action.

5. Young Hearts for Life Program - Advocate Children's Hospital provides free ECG screenings designed to detect potentially life-threatening heart problems in young athletes and active teens across the Chicago area.

6. Championship Hearts Foundation delivers mobile heart screenings and free cardiac evaluations to high school students ages 14-18 at various community venues throughout Texas.

7. In A Heartbeat Cardiac Screening Program offers free ECG screenings to children, teens, and young adults while providing awareness education to identify sudden cardiac arrest risks, primarily serving Connecticut communities.

General/Public Resources

1. American Heart Association (AHA) provides comprehensive information on heart conditions, prevention strategies, CPR training, and healthy living guidelines for the general public.

2. National Heart, Lung, and Blood Institute is a government entity offering evidence-based guidelines on heart health, nutrition, and physical activity.

3. World Heart Federation is a WHO-recognized global organization fighting cardiovascular disease worldwide through heart health promotion and international advocacy efforts.

Additional Advocacy & Support Groups

1. SADS Foundation prevents sudden arrhythmia death syndromes in young people by offering genetic testing information, family support, and resources to those impacted by inherited heart conditions that can lead to sudden cardiac arrest.

2. Children’s Cardiomyopathy Foundation supports families facing pediatric cardiomyopathy through research funding, care navigation, resources, and guidance on genetic testing and specialty centers.

3. Sudden Cardiac Arrest Foundation raises awareness of sudden cardiac arrest in youth by promoting AED accessibility in schools and public spaces, supporting education, survivor networks, and community preparedness.